New Orphanet Website

Orphanet, the European portal for rare disease and orphan drug information, has launched a new website, available at www.orpha.net. Orphanet has been working hard over the last two years to contribute to the effort being made for rare disease patients across Europe. In the UK, Orphanet is hosted within Nowgen as part of its European Project Office.

The new website is a customised portal providing a multitude of information and services all available from the site’s homepage. The database of rare diseases and orphan drugs has been enhanced with new information, including prevalence, onset, mode of inheritance and genetics. Links to related information sources, such as Swiss-Prot, Hugo or EuroGentest are just a click away. The new site also improves searching for a rare disease by gene, clinical sign or symptom.

h3.Orphan Drugs

The orphan drug section has been enriched to provide information on the stage of development for any particular molecule from the moment it receives EMEA orphan designation until its market authorisation in Europe. The website now provides access to the list of ongoing clinical trials by molecule and to all orphan indications of a designated molecule – a service strongly requested by patients.

Site Navigation

Finally, navigation of the new site has been simplified to adequately guide first-time users – a growing part of the website’s visitors as the word of Orphanet spreads. The portal is fully accessible to visually and physically impaired users.

Download the Orphanet Flyer for more information