Evaluation of Clinical Genetics Services
Authored Books
Elliott RA & Payne K. Essentials of economic evaluation in health care. The Pharmaceutical Press; January 2005. ISBN 0 85369 574 1
Academic Journal Papers
McAllister M, Payne K, Nicholls S, MacLeod R, Donnai D, Davies L. Patient empowerment in clinical genetics services. Journal of Health Psychology (in press)
McAllister M, Payne K, Nicholls S, Macleod R, Donnai D, Davies LM. Improving service evaluation in clinical genetics: Identifying effects of genetic diseases on individuals and families.Journal of Genetic Counseling. 2007;16(1):71-83.
McAllister M, Payne K, Nicholls S, Donnai D, Davies L, MacLeod R. The emotional effects of genetic disease: implications for clinical genetics. American Journal of Medical Genetics. 2007; 143A(22):2651-2661.
Payne K, Nicholls S, McAllister M, MacLeod R, Donnai D, Davies LM. Outcome measurement in clinical genetics services: a systematic review of validated measures. Value in Health. 2007; 11 (6)
Payne K, Nicholls S, McAllister M, MacLeod R, Middleton-Price H, Ellis I, Donnai D, Davies LM. Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients’ views. Health Policy . 2007. 84(1):112-122.
Payne K & Elliott R. Using discrete choice experiments to value preferences for pharmacy services International Journal of Pharmacy Practice. 2005; 13:9-20.
Short Papers and letters
Hughes D, Elliott RA, Payne K. Comments on NICE do not reflect expertise available within the
profession. Pharmaceutical Journal. 2006; 277(7423): 484.
Invited presentations
Donnai D. What patients want from genetic services. European Platform for Patients’ organisations (EPPOSI)Conference. London, October 2005.
McAllister M. Evaluating genetics services – exploring the client perspective. Annual Meeting for the British Society of Human Genetics. York, September 2005.
Spoken Conference Presentations
McAllister M, Payne K, Nicholls S, MacLeod R, Middleton-Price H, Donnai D, Davies LM. Towards measuring outcomes in clinical genetics services – a qualitative study identifying outcome measures. International Congress of Human Genetics Conference. Brisbane, August 2006.
McAllister M. Payne K, Nicholls S, Macleod R, Davies L, Middleton-Price H, Donnai D. Evaluation of clinical genetics services – identifying outcome measures. European Human Genetics Conference in conjunction with the European Meeting on Psychosocial Aspects of Genetics. The Netherlands, May 2006.
Beard SM, Davies LM, Earnshaw L, Payne K. Quality and validation standards in healthcare modelling. Contributed workshop for the International Society for Pharmacoeconomics and Outcomes Research. Washington, May 2004.
Payne K, Jarrett J, Davies LM. Incorporating preferences into outcome measures for the valuation of genetic based services. Contributed workshop for the International Society for Pharmacoeconomics and Outcomes Research. Washington, May 2004.
Payne K, McAllister M, Davies D, Nicholls S, Macleod R & Middleton-Price H. Towards valuing outcomes for genetic counselling services. Paper presented at the Oxford Genetics and Economics Workshop, April 2004.
Posters
McAllister M, Nicholls S, Payne K, MacLeod R, Middleton-Price H, Donnai D, Davies LM. Process and outcome in clinical genetics services: A new model developed from qualitative research. Annual Meeting of the British Society of Human Genetics. September 2006.
Journal of Medical Genetics. 2006; 43 supplement 1: s62
Payne K, Nicholls S, McAllister M, MacLeod R, Middleton-Price H, Donnai D, Davies LM. Outcome measurement in clinical genetics services: A systematic review of validated measures. Annual Meeting of the British Society of Human Genetics. September 2006.
Journal of Medical Genetics. 2006; 43 supplement 1: s62
Payne K, Nicholls S, McAllister M, MacLeod R, Middleton-Price H, Donnai D, Davies LM. Towards outcome measures for clinical genetics services: A comparison of genetics healthcare professionals
and patients’ views. Annual Meeting of the British Society of Human Genetics. September 2006.
Journal of Medical Genetics. 2006; 43 supplement 1: s61
Nicholls S, McAllister M, Payne K, MacLeod R, Middleton-Price H, Donnai D, Davies LM. Evaluating clinical genetics services and the involvement of service users. Poster at the 5th National Involve Conference. September 2006.
Payne K, Nicholls S, McAllister M, MacLeod R, Donnai D, Davies LM. Genetics professionals’ views of outcome measures for genetics services: A Delphi survey. International Congress of Human Genetics Conference, Brisbane, August 2006.
Payne K, Nicholls S, McAllister M, MacLeod R, Donnai D, Davies LM. Developing outcome measures for genetics services: A Delphi survey. Society of Medical Decision Making, 10th Biennial European Meeting. June 2006.
Davies L, Payne K, McAllister M, Nicholls S, Macleod R, Middleton-Price H and Donnai D. Service user and providers’ views of appropriate models of clinical genetics service. Annual Meeting of the American Society of Human Genetics. Canada, October 2004.
McAllister M, Payne K, Davies L, Nicholls S, Macleod R, Middleton-Price H and Donnai D. How effective are clinical genetic services? Annual Meeting of the American Society of Human Genetics. Canada, October 2004.
Payne K, McAllister M, Middleton-Price H, Donnai D and Davies L. Valuing preferences for a clinical genetic service. Annual Meeting of the American Society of Human Genetics. Canada, October 2004.
Davies L, Payne K, McAllister M, Nicholls S, Macleod R, Middleton-Price H and Donnai D. Developing appropriate models of service delivery in clinical genetics. Central Manchester and Manchester Children’s University Hospitals NHS Trust Healthcare Science Week/ Research & Development Exhibition. October 2004.
McAllister M, Payne K, Davies L, Nicholls S, Macleod R, Middleton-Price H and Donnai D. How can we measure whether clinical genetic services are effective? Central Manchester and Manchester Children’s University Hospitals NHS Trust Healthcare Science Week/ Research & Development Exhibition, October 2004.
Payne K, McAllister M, Middleton-Price H, Donnai D and Davies L. Using discrete choice experiments to value preferences for a clinical genetic service. Central Manchester and Manchester Children’s University Hospitals NHS Trust Healthcare Science Week/ Research & Development Exhibition, October 2004.
Davies L, Payne K, McAllister M, Nicholls S, Macleod R, Middleton-Price H and Donnai D. Developing appropriate models of service delivery in clinical genetics. Annual Meeting of the British Society of Human Genetics. York, September 2004.
Journal of Medical Genetics. 2004; 41: supplement 1:s47
McAllister M, Payne K, Davies L, Nicholls S, Macleod R, Middleton-Price H and Donnai D. How can we measure whether clinical genetic services are effective? Annual Meeting of the British Society of Human Genetics. York, September 2004.
Journal of Medical Genetics. 2004; 41: supplement 1:s47.
Payne K, McAllister M, Middleton-Price H, Donnai D and Davies L. Using discrete choice experiments to value preferences for a clinical genetic service. Annual Meeting of the British Society of Human Genetics. York, September 2004.
Journal of Medical Genetics. 2004; 41: supplement 1:s46
McAllister M, Payne K, Nicholls S, Macleod R, and Davies L. Towards valuing outcomes and preferences for clinical genetics services. European Meeting on Psychosocial Aspects of Genetics. Munich, June 2004.
Further Published Abstracts
McAllister M, Marks P. Attitudes and experiences of men at risk for BRCA1/2. European Journal of Human Genetics. 2006; 14: Supplement I, EP55
