Pam Griffiths

Pam is currently the Project Manager for DYSCERNE, an EU-funded project which will establish a European Network of Centres of Expertise for dysmorphology. The Network aims to raise current standards for the diagnosis, management and information dissemination relating to rare dysmorphic syndromes by establishing a web-based electronic diagnostic system, and by developing management guidelines and care tools for selected conditions.
Prior to this, Pam was the Project Co-ordinator working on a Department of Health-funded, Service Development Project which focused on the design and implementation of a range of care tools for monitoring and managing genetic disorders in primary and secondary care, including the ‘Blue Books’, hand-held patient records for people with genetic conditions. The project also looked at the development and implementation of new models of service delivery for people with inherited cardiac conditions. The project aimed to encourage the sharing of experiences and information between health care professionals, facilitating multidisciplinary collaboration, and ultimately assisting individuals affected by a genetic condition achieve improvements in health and well-being.
Pam previously worked as a Research Associate on a trial which investigated the effectiveness of using computer-assisted detection (CAD) in the NHS Breast Cancer Screening Programme. Prior to this she worked for ten years as a manager in local government, and before that as a graduate management trainee within the Department of Health, based at the Regional Medical Boarding Centre in Manchester.