Empowerment

Developing a robust instrument to measure patient benefits from clinical genetics services

Dr Marion McAllister has completed her 3-year MRC-funded Special Training Fellowship in Health Services Research at the University of Manchester, hosted in the Nowgen Centre. This work has recently been published:

McAllister M, Wood A, Dunn G, Shiloh S, Todd C. The Genetic Counseling Outcome Scale: A New Patient Reported Outcome Measure for Clinical Genetics Services. Clinical Genetics2011 Epub Jan 21. doi: 10.1111/j.1399-0004.2011.01636.x.

This Patient Reported Outcome Measure (PROM) was developed based on extensive qualitative research to identify the outcomes valued by patients of clinical genetics services, and by service providers, and has potential as a clinical genetics-specific PROM for use in evaluating interventions, in both research and clinical practice.