Changing Futures (formerly know as Looking Forward) is a project that brought teenagers with Cystic Fibrosis (CF), clinicians, artists, scientists and educationalists together to develop online resources exploring gene therapy and CF (www.changing-futures.co.uk).
The project team used creative approaches to explore:
- The history of gene therapy for CF and the latest developments
- Young people's experience of living with CF
- How gene therapy might work and what young people think about this possible new treatment
Supported by Wellcome Trust, the Changing Futures project held a series of creative workshops to enable young people living with CF to share their experiences of the disease and their expectations and opinions on gene therapy. With the help of the project team, they conducted interviews with scientists, and produced video diaries, animations, fashion and art, a music mash-up video and classroom resources for teachers.
The Changing Futures website is split into three zones: The CF Zone, The Gene Therapy Zone and The Teacher Zone. The first two zones explore how CF is inherited and the effect it has on people's lives, as well as the history of gene therapy and the latest developments. The third zone is specifically for teachers, it includes activities and experiments, interviews with a range of experts and links to further information, to complement elements of the National Curriculum and A-Level Biology.
Changing Futures is a unique collaboration that puts young people with CF at the centre of planning an educational arts package to ensure that the resource created is valuable and meaningful.
If you want to find out more about this project, please contact Kate Dack (firstname.lastname@example.org or +44 (0)161 276 8943).
To view the Changing Futures website please visit www.changing-futures.co.uk
Download a summary of project (presented at the British Society of Human Genetics)